Emma has been having trouble due to her inability to handle feeds (in the last 13 days, she's only had 1 day's worth of feeds), laxatives...

After Emma had her brain MRI earlier this week, several of you on Facebook mentioned she might have Chiari Malformation due to the syrinx...

Emma had her MRI yesterday to check out her brain. The results were sent to Dr Davies, who responded quickly. I'm so happy our new...

When I last posted, we thought things were improving, but it turns out they weren't and aren't. We stopped a couple meds, gave it time,...

Thank you all for you ideas on what might be wrong with Emma's muscle control issues. On Sunday, I sent the video of Emma to her hem/onc,...

Hey Guys!! I've been meaning to update. We arrived home on Thursday. It turns out that finding time to get to the computer, with four...